Absolom K, Warrington L, Hudson E, Hewison J, Morris C, Holch P, Carter R, Gibson A, Holmes M, Clayton B, Rogers Z, McParland L, Conner M, Glidewell L, Woroncow B, Dawkins B, Dickinson S, Hulme C, Brown J, Velikova G. Phase III Randomized Controlled Trial of eRAPID: eHealth Intervention During Chemotherapy. J Clin Oncol. 2021 Jan 8:JCO2002015. doi: 10.1200/JCO.20.02015. Epub ahead of print. PMID: 33417506.

Catto JWF, Downing A, Mason S, Wright P, Absolom K, Bottomley S, Hounsome L, Hussain S, Varughese M, Raw C, Kelly P, Glaser AW. 2021. Quality of life after bladder cancer: A cross-sectional survey of patient-reported outcomes. European Urology.


Archer S, Holch P, Armes J, Calman L, Foster C, Gelcich S, MacLennan SJ, Absolom K. 2020. “No turning back” Psycho‐oncology in the time of COVID‐19: Insights from a survey of UK professionals. Psycho-Oncology.

Boele FW, Meads D, Jansen F, Verdonck-de Leeuw IM, Heimans JJ, Reijnveld JC, Short SC, Klein M (2020). Health-care utilization and productivity loss in glioma patients and their family caregivers: the impact of treatable psychological symptoms. Journal of Neuro-Oncology, 147(2):485-494.

Kennedy F, Absolom K, Clayton B, Rogers Z, Gordon K, O’Connell Francischetto E, Blazeby JM, Brown J, Velikova G. 2020. Electronic Patient Reporting of Adverse Events and Quality of Life: A Prospective Feasibility Study in General Oncology. JCO Oncology Practice.

Kennedy F, Shearsmith L, Ayres M, Lindner OC, Marston L, Pass A, Danson S, Velikova G. (2020). Online monitoring of patient self-reported adverse events in Early Phase Clinical Trials: views from patients, clinicians, and trial staff. Clinical Trials, online first.

Le Rhun E, Dirven L, Niclou S, Short S, Piil K, Boele F, Ruda R, Theodorou M, Brandsma D, Weller M, van den Bent M, on behalf of the EANO Women in Neuro-Oncology committee (2020). Gender issues from the perspective of healthcare professionals in neuro-oncology: an EANO & EORTC Brain Tumor Group survey. Neuro-Oncology Practice, Epub ahead of print.

Nicklin E, Velikova G, Boele F. 2020. Technology is the future, but who are we leaving behind? The Lancet Oncology. 21(1), pp. 29-29.

Pompili C, Boele F, Absolom K, Holch P, Clayton B, Smillye E, Franks K, Velikova G. 2020. Patient views of routine quality of life assessment following a diagnosis of early stage non-small cell lung cancer. Interactive Cardiovascular and Thoracic Surgery.31(3), pp. 324-330

Pompili C, Holch P, Rogers Z, Absolom K, Clayton B, Franks K, Bekker H, Velikova G. 2020. Patients’ confidence in treatment decisions for early stage non-small cell lung cancer (NSCLC). Health and Quality of Life Outcomes. 18(1).

Richards, H.S., Blazeby, J.M., Portal, A. et al. A real-time electronic symptom monitoring system for patients after discharge following surgery: a pilot study in cancer-related surgery. BMC Cancer 20, 543 (2020). URL:

Richards, H.S., Portal, A., Absolom, K. et al. Patient experiences of an electronic PRO tailored feedback system for symptom management following upper gastrointestinal cancer surgery. Qual Life Res (2020). URL:

Shearsmith L, Kennedy F, Lindner O, Velikova G. (2020).Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment. Journal of Patient-Reported Outcomes, 4: 71. doi:10.1186/s41687-020-00237-2 

Stover AM, Schougaard LMV, Absolom K. 2020. Registered Reports: clarifications and opportunities from ISOQOL’S Special Interest Group for Clinical Practice. Quality of Life Research.29(12), pp. 3183-3184.


Absolom K, Gibson A & Velikova G. Engaging Patients and Clinicians in Online Reporting of Adverse Effects During Chemotherapy for Cancer: The eRAPID System (Electronic Patient Self-Reporting of Adverse Events: Patient Information and aDvice). Med Care. 2019 May;57 Suppl 5 Suppl 1:S59-S65. https:doi: 10.1097/MLR.0000000000001085.

Avery KNL, Richards HS, Portal A, Reed T, Harding R, Carter R, et al. Developing a real-time electronic symptom monitoring system for patients after discharge following cancer-related surgery. BMC Cancer 2019;19:463. URL:

Boele F, Harley C, Pini S, Kenyon L, Daffu-O’Reilly A, Velikova G. 2019. Cancer as a chronic illness: support needs and experiences. BMJ Supportive and Palliative Care.

Boele FW, Rooney AG, Bulbeck H, Sherwood P (2019). Interventions to help support caregivers of people with a brain or spinal cord tumour [review]. Cochrane Database of Systematic Reviews 2019,7: CD012582.

Boele FW, Terhorst L, Prince J, Donovan HS, Weimer J, Lieberman FS, Drappatz J, Sherwood PR (2019). Psychometric evaluation of the Caregiver Needs Screen in neuro-oncology family caregivers. Journal of Nursing Measurement, 27(2):162-176.

Downing A, Wright P, Hounsome, L et al. (2019) Quality of life in men living with advanced and localised prostate cancer in the UK: a population-based study. Lancet Oncology, 20 (3). pp. 436-447. ISSN 1470-2045

Lindner OC, Velikova G, Stark DP. Digitally enabled patient-reported outcome measures in cancer care. Lancet Oncology 2019;20:E2.

Nicklin E, Velikova G, Hulme C, Rodriguez Lopez R, Glaser A, Kwok-Williams M, Boele F. 2019. Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. Psycho-Oncology. 28(3), pp. 477-487.

Pompili C, Absolom K, Franks K, Velikova G. 2018. Are quality of life outcomes comparable following stereotactic radiotherapy and minimally invasive surgery for stage I lung cancer patients?. Journal of Thoracic Disease. 10(12), pp. 7055-7063.

Pompili C, Edwards M, Bhandari P, Novoa N, Hasegawa S, Yoshino I, Chida M, Brunelli A, Naunheim K, Backhus L. STS, ESTS and JACS survey on surveillance practices after surgical resection of lung cancer. Interact Cardiovasc Thorac Surg. 2019 Oct 1;29(4):532-538. 

Warrington L, Absolom K, Holch P, Gibson A, Clayton B, Velikova G. Online tool for monitoring adverse events in patients with cancer during treatment (eRAPID): field testing in a clinical setting. BMJ Open 2019;9:e025185. URL:

Warrington L, Absolom K, Conner M, Kellar I, Clayton B, Ayres M, et al. Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review. J Med Internet Res 2019;21:e10875. URL:


Ashley L, Velikova G, Downing A, Morris E, Wright P. 2017. Health-related quality of life in cancer survivorship: predictive power of the Social Difficulties Inventory. Psycho-Oncology. 26(11), pp. 1994-1997.

Boele FW, Klein M, Verdonck-de Leeuw IM, Cuijpers P, Heimans JJ, Snijders TJ, Vos M, Bosma I, Tijssen CC, Reijneveld JC (2018). Internet-based guided self-help for glioma patients with depressive symptoms: a randomized controlled trial. Journal of Neuro-Oncology,137(1):191-203

Brunelli A, Pompili C, Dinesh P, Bassi V, Imperatori A. Financial validation of the European Society of Thoracic Surgeons risk score predicting prolonged air leak after video-assisted thoracic surgery lobectomy. J Thorac Cardiovasc Surg. 2018 Sep;156(3):1224-1230.

Basch E, Barbera L, Kerrigan CL, Velikova G. Implementation of Patient-Reported Outcomes in Routine Medical Care. Am SocClinOncolEduc Book 2018;38:122-34. URL:

Downing A, Wright P, Hounsome L, Selby P, Wilding S, Watson E, Wagland R, Kind P, Donnelly DW, Butcher H, Catto JWF, Cross W, Mason M, Sharp L, Weller D, Velikova G, McCaughan E, Mottram R, Allen M, Kearney T, McSorley O, Huws DW, Brewster DH, McNair E, Gavin A, Glaser AW. Quality of life in men living with advanced and localised prostate cancer: A United Kingdom population-wide patient-reported outcome study of 30,000 men. Lancet Oncology.

Holch P, Pini S, Henry A, Davidson S, Routledge J, Brown J, et al. eRAPID Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice: A pilot study protocol in pelvic radiotherapy. Pilot and Feasibility Studies 2018;4:1-15. URL:

Lindner OC, McCabe MG, Boele F, Mayes A, Talmi D, Radford J, Wearden A (2018). Discussing factors associated with quality of life in cancer follow-up appointments: A preliminary test of a pragmatic model for clinical practice. Clinical Rehabilitation, 33(4):762-772.

Mason SJ, Catto JW, Downing A, Bottomley SE, Glaser AW, Wright P. 2018. Evaluating Patient Reported Outcome Measures (PROMs) for bladder cancer: a systematic review using the COSMIN checklist.. BJU international. 122(5), pp. 760-773.

Mason SJ, Downing A, Wright P, Hounsome L, Bottomley SE, Corner J, Richards M, Catto JW, Glaser AW. 2018. Health-related quality of life after treatment for bladder cancer in England. British Journal of Cancer. 118(11), pp. 1518-1528.

Oyebode JR, Pini S, Ingleson E, Megson M, Horton M, Clare L, Al-Janabi H, Brayne C, Wright P. Development of an Item Pool for a Needs-Based Measure of Quality of Life of Carers of a Family Member with Dementia. The Patient: Patient Centered Outcomes Research.

Pini S, Ingleson E, Megson M, Clare L, Wright P, Oyebode JR. 2018. A Needs-led Framework for Understanding the Impact of Caring for a Family Member With Dementia. Gerontologist. 58(2), pp. e68-e77.

Pompili C, Absolom K, Velikova G, Backhus L. 2018. Patients reported outcomes in thoracic surgery. Journal of Thoracic Disease. 10(2), pp. 703-706.

Pompili C, Koller M, Velikova G, Franks K, Absolom K, Callister M, Robson J, Imperatori A, Brunelli A. 2018. EORTC QLQ-C30 summary score reliably detects changes in QoL three months after anatomic lung resection for Non-Small Cell Lung Cancer (NSCLC). Lung Cancer. 123, pp. 149-154.

Pompili C, Absolom K, Franks K, Velikova G. Are quality of life outcomes comparable following stereotactic radiotherapy and minimally invasive surgery for stage I lung cancer patients? J Thorac Dis. 2018 Dec;10(12):7055-7063.

Taarnhøj GA, Kennedy FR, Absolom KL, Bæksted C, Vogelius IR, Johansen C, Velikova G, Pappot H. 2018. Comparison of EORTC QLQ-C30 and PRO-CTCAE™ questionnaires on six symptom items. Journal of Pain and Symptom Management. 56(3), pp. 421-429.


Absolom K, Holch P, Warrington L, Samy F, Hulme C, Hewison J, et al. Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice (eRAPID): a randomised controlled trial in systemic cancer treatment. BMC Cancer 2017;17:318.URL:

Ashley L, Velikova G, Downing A, Morris E, Wright P. 2017. Health-related quality of life in cancer survivorship: predictive power of the Social Difficulties Inventory. Psycho-Oncology. 26(11), pp. 1994-1997.

Boele FW, van Uden-Kraan CF, Hilverda K, Weimer J, Donovan HS, Drappatz J, Lieberman FS, Verdonck-de Leeuw I, Sherwood PR (2017). Neuro-oncology family caregivers’ view on keeping track of care issues using eHealth systems: it’s a question of time. Journal of Neuro-Oncology, 134(1):157-67.

Boele FW, Grant R & Sherwood PR (2017). Challenges and support for family caregivers of glioma patients. British Journal of Neuroscience Nursing, 13(1):8-16.

Boele FW, Given CW, Given BA, Donovan HS, Schulz R, Weimer J, Drappatz J, Lieberman FS & Sherwood PR (2017). Family caregivers’ level of mastery predicts survival of patients with glioblastoma: a preliminary report. Cancer, 123(5):832-840.

Brunelli A, Pompili C, Dinesh P, Bassi V, Imperatori A. Financial validation of the European Society of Thoracic Surgeons risk score predicting prolonged air leak after video-assisted thoracic surgery lobectomy. J Thorac Cardiovasc Surg. 2018 Sep;156(3):1224-1230.

Holch P, Henry A, Davidson S, Gilbert A, Routledge J, Shearsmith L, Franks K, Ingleson E, Albutt A, Velikova G. Acute and Late Adverse Events Associated With Radical Radiation Therapy Prostate Cancer Treatment: A Systematic Review of Clinician and Patient Toxicity Reporting in Randomized Controlled Trials. Int J Radiation Oncol Biol Phys, Vol. 97, No. 3, pp. 495-510, 2017

Holch P, Warrington L, Bamforth L, Keding A, Ziegler L, Absolom K, Hector C, Harley C, Johnson O, Hall G, Morris C, Velikova G. Development of an integrated electronic platform for patient self-report and management of adverse events during cancer treatment. Annals of Oncology, Volume 28, Issue 9, 1 September 2017, Pages 2305–2311.

Pompili C, Franks KN, Brunelli A, Hussain YS, Holch P, Callister ME, Robson JM, Papagiannopoulos K, Velikova G. 2017. Patient reported outcomes following video assisted thoracoscopic (VATS) resection or stereotactic ablative body radiotherapy (SABR) for treatment of non-small cell lung cancer: protocol for an observational pilot study (LiLAC). Journal of Thoracic Disease. 9(8), pp. 2703-2713.

Pompili C, Shargall Y, Decaluwe H, Moons J, Chari M, Brunelli A. Risk-adjusted performance evaluation in three academic thoracic surgery units using the Eurolung risk models. Eur J Cardiothorac Surg. 2018

Pompili C, Velikova G, White J, Callister M, Robson J, Dixon S, Franks K, Brunelli A. 2017. Poor preoperative patient-reported quality of life is associated with complications following pulmonary lobectomy for lung cancer. European Journal of Cardio-Thoracic Surgery. 51(3), pp. 526-531.


Absolom K, Warrington L, Gibson A, Holmes M, Rogers Z, Clayton B, Holch P, Velikova G. 2016. eRAPID electronic patient self-reporting of adverse-events-patient information and advice: results from pilot phase of an RCT in systemic cancer treatment. QUALITY OF LIFE RESEARCH. 25, pp. 178-179.

Boele FW, van Uden-Kraan CF, Hilverda K, Reijneveld JC, Cleijne W, Klein M & Verdonck-de Leeuw IM (2016). Attitudes and preferences towards monitoring symptoms, distress and quality of life in glioma patients and their informal caregivers. Supportive Care in Cancer, 24(7):3011-22.

Day J, Gillespie DC, Rooney AG, Bulbeck HJ, Zienius K, Boele F & Grant R (2016). Neurocognitive deficits and neurocognitive rehabilitation in adult brain tumors. Current Treatment Options in Neurology, 18(5):22.

Holch P, Warrington L, Potrata B, Ziegler L, Hector C, Keding A, Harley C, Absolom K, Morris C, Bamforth L, Velikova G. 2016. Asking the right questions to get the right answers: using cognitive interviews to review the acceptability, comprehension and clinical meaningfulness of patient self-report adverse event items in oncology patients. Acta Oncologica. 55(9-10), pp. 1220-1226.

Pompili C, Franks K, Brunelli A, White J, Dixon S, Callister M, Robson J, Velikova G. 2016. Deterioration of quality of life after surgical treatment of non-small cell lung cancer (NSCLC): an interim analysis. QUALITY OF LIFE RESEARCH. 25, pp. 159-159.

Rogers Z, Holch P, Holmes M, Davidson S, Routledge J, Henry A, Franks K, Gilbert A, Dickinson S, Velikova G. 2016. Healthcare professional (HCP) attitudes to the implementation of eRAPID (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice) during and after pelvic radiotherapy: a qualitative interview study. PSYCHO-ONCOLOGY. 25, pp. 13-14.

Sherwood PR, Price TJ, Weimer J, Ren D, Donovan HS, Given CW, Given BA, Schulz R, Prince J, Bender C, Boele FW & Marsland AL (2016). Neuro-oncology caregivers are at risk for systemic inflammation. Journal of Neuro-Oncology, 128(1):109-18.

Warrington L, Holch P, Kenyon L, Hector C, Kozlowska K, Kenny AM, Ziegler L, Velikova G. An audit of acute oncology services: patient experiences of admission procedures and staff utilisation of a new telephone triage system. Support Care Cancer. 2016 Dec;24(12):5041-5048. PubMed 27540738


Absolom K, Holch P, Woroncow B, Wright EP, Velikova G (2015) Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes. Qual Life Res 24(5): 1077-85

Ashley L, Marti J, Jones H, Velikova G, Wright P (2015) Illness perceptions within 6 months of cancer diagnosis are an independent prospective predictor of health-related quality of life 15 months post-diagnosis. Psychooncology 24(11): 1463-70

Downing A, Morris EJA, Richards M, Corner J, Wright P, Sebag-Montefiore D, Finan P, Kind P, Wood C, Lawton S, Feltbower R, Wagland R, Vernon S, Thomas J, Glaser AW (2015) Health-Related Quality of Life After Colorectal Cancer in England: A Patient-Reported Outcomes Study of Individuals 12 to 36 Months After Diagnosis. Journal of Clinical Oncology 33(6): 616-624

Gilbert A, Sebag-Montefiore D, Davidson S, Velikova G (2015) Use of patient-reported outcomes to measure symptoms and health related quality of life in the clinic. Gynecol Oncol 136(3): 429-39

Gilbert A, Ziegler L, Martland M, Davidson S, Efficace F, Sebag-Montefiore D, Velikova G (2015) Systematic Review of Radiation Therapy Toxicity Reporting in Randomized Controlled Trials of Rectal Cancer: A Comparison of Patient-Reported Outcomes and Clinician Toxicity Reporting. Int J Radiat Oncol Biol Phys 92(3): 555-67

Hall PS, Hamilton P, Hulme CT, Meads DM, Jones H, Newsham A, Marti J, Smith AF, Mason H, Velikova G, Ashley L, Wright P (2015) Costs of cancer care for use in economic evaluation: a UK analysis of patient-level routine health system data. Br J Cancer 112(5): 948-56

Harley C, Pini S, Bartlett YK, Velikova G (2015) Defining chronic cancer: patient experiences and self-management needs. BMJ Support Palliat Care 5(4): 343-50

Horne B, Newsham A, Velikova G, Liebersbach S, Gilleece M, Wright P (2015) Development and evaluation of a specifically designed website for haematopoietic stem cell transplant patients in Leeds. Eur J Cancer Care, 1-17

McDonnell A, Goodwin E, Kennedy F, Hawley K, Gerrish K, Smith C (2015) An evaluation of the implementation of Advanced Nurse Practitioner (ANP) roles in an acute hospital setting. J Adv Nurs 71(4): 789-99.

Santana MJ, Haverman L, Absolom K, Takeuchi E, Feeny D, Grootenhuis M, Velikova G. Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Qual Life Res. 2015 Jul;24(7):1707-18. doi:10.1007/s11136-014-0903-5. Epub 2015 Jan 15.

Taylor S, Harley C, Absolom K, Brown J, Velikova G, (in press). (2015) Breast cancer, sexuality and intimacy: Addressing the unmet need. The Breast Journal

Tod A, Kennedy F, Stocks A, McDonnell A, Ramaswamy B, Wood B, Whitfield M, (in press). (2015) Good quality social care for people with Parkinson’s: A qualitative study. BMJ Open

Warrington L, Absolom K, Velikova G. Integrated care pathways for cancer survivors – a role for patient-reported outcome measures and health informatics. Acta Oncol 2015:1-9.

Wright P, Downing A, Morris EJA, Corner JL, Richards MA, Sebag-Montefiore D, Finan P, Glaser AW (2015) Identifying Social Distress: A Cross-Sectional Survey of Social Outcomes 12 to 36 Months After Colorectal Cancer Diagnosis. Journal of Clinical Oncology 33(30): 3423


Ashley, L., Smith, AB., Jones, H., Velikova, G., Wright, P.  “Traditional and Rasch psychometric analyses of the Quality of Life in Adult Cancer Survivors (QLACS) questionnaire in shorter-term cancer survivors 15 months post diagnosis.”  Journal of Psychometric Research. 77, no. 4 (2014): 349-62 DOI: 10.1016/j.jpsychores.2014.07.007

Cocks, K., G. Velikova, M. T. King, P. M. Fayers, and J. M. Brown. “Can Individual Patients Assess Differences in Quality of Life between Groups of Patients?” [In eng]. Eur J Cancer Care (Engl) 23, no. 2 (Mar 2014): 228-38. DOI: 10.1111/ecc.12113

Horne, B., M. Gilleece, G. Jackson, J. A. Snowden, S. Liebersbach, G. Velikova, and P. Wright. “Psychosocial Supportive Care Services for Haematopoietic Stem Cell Transplant Patients; a Service Evaluation of Three Uk Transplant Centres.” [In eng]. Eur J Cancer Care (Engl) 23, no. 3 (May 2014): 349-62. DOI: 10.1111/ecc.12160

Wright, P., D. Fenlon, H. Jones, C. Foster, L. Ashley, K. Chivers Seymour, G. Velikova, I. Okamoto, and J. Brown. “Using the Clinical Research Network for Psychosocial Cancer Research: Lessons Learned from Two Observational Studies.” [In Eng]. BMJ Support Palliat Care  (Aug 19 2013). DOI: 10.1136/bmjspcare-2012-000410


Acaster, S., S. Gaugris, G. Velikova, K. Yong, and A. J. Lloyd. “Impact of the Treatment-Free Interval on Health-Related Quality of Life in Patients with Multiple Myeloma: A Uk Cross-Sectional Survey.” [In eng]. Support Care Cancer 21, no. 2 (Feb 2013): 599-607. DOI: 10.1007/s00520-012-1548-y

Arraras, J. I., E. Greimel, W. C. Chie, O. Sezer, M. Bergenmar, A. Costantini, T. Young, K. K. Vlasic, and G. Velikova. “Cross-Cultural Differences in Information Disclosure Evaluated through the Eortc Questionnaires.” [In eng]. Psychooncology 22, no. 2 (Feb 2013): 268-75. DOI: 10.1002/pon.2088

Ashley, L., A. Keding, J. Brown, G. Velikova, and P. Wright. “Score Equivalence of Electronic and Paper Versions of the Social Difficulties Inventory (Sdi-21): A Randomised Crossover Trial in Cancer Patients.” [In eng]. Qual Life Res 22, no. 6 (Aug 2013): 1435-40. DOI: 10.1007/s11136-012-0242-3

Ashley, L., A. B. Smith, A. Keding, H. Jones, G. Velikova, and P. Wright. “Psychometric Evaluation of the Revised Illness Perception Questionnaire (Ipq-R) in Cancer Patients: Confirmatory Factor Analysis and Rasch Analysis.” [In eng]. J Psychosom Res 75, no. 6 (Dec 2013): 556-62. DOI: 10.1016/j.jpsychores.2013.08.005

Ashley L, Jones H, Thomas J, Newsham A, Downing A, Morris E, Brown J, Velikova G, Forman D, Wright P. Integrating patient reported outcomes with clinical cancer registry data: a feasibility study of the electronic Patient-Reported Outcomes From Cancer Survivors (ePOCS) system. J Med Internet Res. 2013 Oct 25;15(10):e230. doi: 10.2196/jmir.2764

Eccles, S. A., E. O. Aboagye, S. Ali, A. S. Anderson, J. Armes, F. Berditchevski, J. P. Blaydes, et al. “Critical Research Gaps and Translational Priorities for the Successful Prevention and Treatment of Breast Cancer.” [In eng]. Breast Cancer Res 15, no. 5 (2013): R92. DOI:10.1186/bcr3493

Greenhalgh, J., P. Abhyankar, S. McCluskey, E. Takeuchi, and G. Velikova. “How Do Doctors Refer to Patient-Reported Outcome Measures (Proms) in Oncology Consultations?” [In eng]. Qual Life Res 22, no. 5 (Jun 2013): 939-50. DOI: 10.1007/s11136-012-0218-3

Petersen, M. A., N. K. Aaronson, J. I. Arraras, W. C. Chie, T. Conroy, A. Costantini, J. M. Giesinger, et al. “The Eortc Computer-Adaptive Tests Measuring Physical Functioning and Fatigue Exhibited High Levels of Measurement Precision and Efficiency.” [In eng]. J Clin Epidemiol 66, no. 3 (Mar 2013): 330-9. DOI: 10.1016/j.jclinepi.2012.09.010

Reeve, B. B., K. W. Wyrwich, A. W. Wu, G. Velikova, C. B. Terwee, C. F. Snyder, C. Schwartz, et al. “Isoqol Recommends Minimum Standards for Patient-Reported Outcome Measures Used in Patient-Centered Outcomes and Comparative Effectiveness Research.” [In eng]. Qual Life Res 22, no. 8 (Oct 2013): 1889-905. DOI: 10.1007/s11136-012-0344-y

Stark, D., M. Nankivell, E. Pujade-Lauraine, G. Kristensen, L. Elit, M. Stockler, F. Hilpert, et al. “Standard Chemotherapy with or without Bevacizumab in Advanced Ovarian Cancer: Quality-of-Life Outcomes from the International Collaboration on Ovarian Neoplasms (Icon7) Phase 3 Randomised Trial.” [In eng]. Lancet Oncol 14, no. 3 (Mar 2013): 236-43.         DOI: 10.1016/S1470-2045(12)70567-3

Taylor, S., C. Harley, E. Takeuchi, J. Brown, and G. Velikova. “Detecting and Discussing Sexual Problems During Chemotherapy for Breast Cancer.” [In eng]. Breast J 19, no. 5 (Sep-Oct 2013): 566-7. DOI: 10.1111/tbj.12168


Armitage G, Taylor J, Ashley L  (2012). Systematic assessment in child protection: improving outcomes. Nursing Children and Young People 24(2): 20-22.

Bartlett, Y. K., D. L. Selby, A. Newsham, A. Keding, D. Forman, J. Brown, G. Velikova, and P. Wright. “Developing a Useful, User-Friendly Website for Cancer Patient Follow-Up: Users’ Perspectives on Ease of Access and Usefulness.” European Journal of Cancer Care  21, no. 6 (Nov 2012): 747-757. DOI: 10.1111/j.1365-2354.2012.01357.x

Wright EP, Bingham L, Taylor S, Hanif N, Podmore EJ, Velikova G (2012). Managing social difficulties: roles and responsibilities of patients and staff. Psycho-oncology 21(1):20-28. DOI: 10.1002/pon.1858


Absolom K, Holch, P. Pini, S. Hill, K. Lui, A. Sharpe, M. Richardson, A. Velikova, G. (2011): The detection and management of emotional distress in cancer patients: the views of health care professionals. Psycho-oncology, 20(6) 601-608 doi: 10.1002/pon.1916

Ashley, L., Dexter, R., Marshall, F., McKenzie, B., Ryan, M., & Armitage, G. (2011). Improving the safety of chemotherapy administration: An oncology nurse-led failure mode and effects analysis. Oncology Nursing Forum, 38(6): E436-E444. DOI: 10.1188/11.ONF.E436-E444

Ashley L, Jones H, Forman D, Newsham A, Brown J, Downing A, Velikova G, Wright P. Feasibility test of a UK-scalable electronic system for regular collection of patient-reported outcome measures and linkage with clinical cancer registry data: The electronic Patient-reported Outcomes from Cancer Survivors (ePOCS) system. BMC Medical Informatics and Decision Making 2011: 11: 66.

Ashley L, Jones H, Thomas J, Forman D, Newsham A, Morris E, Johnson O, Velikova G, Wright P. Integrating cancer survivors’ experiences into UK cancer registries: design and development of the ePOCS system (electronic Patient-reported Outcomes from Cancer Survivors). Br J Cancer 2011: 105: S74-S81.

Ashley, L., O’Connor, D.B., & Jones, F. (2011). Effects of emotional disclosure in caregivers: Moderating role of alexithymia. Stress and Health, 27(5): 376-387. DOI: 10.1002/smi.1388

Brearley, S. G., Stamataki, Z., Addington-Hall, J., Foster, C., Hodges, L., Jarrett, N., Ziegler,L., Amir, Z. (2011, July). The physical and practical problems experienced by cancer survivors: A rapid review and synthesis of the literature. EUR J ONCOL NURS, 15(3), 204-212. doi:10.1016/j.ejon.2011.02.005

Dharni N, Hanif N, Bradley C, Velikova G, Stark D, Wright P. The social difficulties of cancer patients of South Asian Indian and Pakistani origin: a cross-sectional questionnaire and interview study. BMJ Supportive & Palliative Care 2011: 1: 154-161.

Hanif N, Dharni N, Smith A, Chattoo S, Velikova G, Bradley C, Stark D, Wright P. Translation of the Social Difficulties Inventory (SDI-21) into three south Asian languages and preliminary evaluation of SDI-21(Urdu). Quality of Life Research 2011: 20: 431-438.

Holch, P, Absolom, K, L, Pini, S, Hill, K M. Liu, A, Sharpe, M. Richardson, A, Hosker, C & Velikova, G. (2011) Oncology professionals’ views on the use of antidepressants in cancer patients: a qualitative interview study. British Medical Journal Supportive & Palliative Care, 1(3) 301-305 doi:10.1136/bmjspcare-2011-000076

Richardson A, Addington-Hall J, Amir Z, Foster C, Stark D, Armes J, Ziegler L, Sharpe M (2011). Knowledge, ignorance and priorities for research in key areas of cancer survivorship: findings from a scoping review. British Journal of Cancer 105(Suppl 1): S82-S94. DOI:10.1038/bjc.2011.425

Smith A, Wright P, Selby P, Velikova G. Measurement invariance of the 16-item social distress scale. Quality of Life Research 2011: 20: 507-511.

Taylor, S., Harley, C., Ziegler, L., Brown, J., & Velikova, G. (2011). Interventions for sexual problems following treatment for breast cancer: A systematic review. Breast Cancer Research and Treatment, 130(3), 711-724. doi:10.1007/s10549-011-1722-9

Wright P, Smith A B, Keding A, Velikova G. The Social Difficulties Inventory (SDI): development of subscales and scoring guidance for staff. Psycho-Oncology 2011: 20: 36-43.

Ziegler, L., Hill, K., Neilly, L., Bennett, M. I., Higginson, I. J., Murray, S. A., . . . COMPASS Collaborative. (2011, March). Identifying psychological distress at key stages of the cancer illness trajectory: a systematic review of validated self-report measures.. J Pain Symptom Manage, 41(3), 619-636. doi:10.1016/j.jpainsymman.2010.06.024

2010 and earlier

Ashley, L., & Armitage, G. (2010). Failure mode and effects analysis: An empirical comparison of failure mode scoring procedures. Journal of Patient Safety, 6(4): 210-215. DOI: 10.1097/PTS.0b013e3181fc98d7

Ashley, L., Armitage, G., Neary, M., & Hollingsworth, G. (2010). A practical guide to failure mode and effects analysis in health care: Making the most of the team and its meetings. The Joint Commission Journal on Quality and Patient Safety, 36(8): 351-358.

Rodgers, RJ, Holch, P. & Tallett, A. (2010) Behavioural satiety sequence (BSS) separating the wheat from the chaff in the behavioural pharmacology of appetite. Pharmacology Biochemistry and Behavior, 97: 3-14

Velikova G, Keding A, Harley C, Cocks K, Booth L, Smith A B, Wright P, Selby P J, Brown J M. Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. European Journal of Cancer 2010: 46: 2381-2388.

Podmore E J, Bingham L C, Roberts K M, Selby P J, Wright P, Velikova G. Routine assessment of social difficulties in cancer patients: are we opening Pandora’s box? Supportive Care in Cancer 2009: 17: 1425-1432.

Smith A B, Rush R, Wright P, Stark D, Velikova G, Sharpe M. Validation of an item bank for detecting and assessing psychological distress in cancer patients. Psycho-Oncology 2009: 18: 195-199.

Dasgupta D, Smith AB, Hamilton-Burke W, Prasad KR, Toogood GJ, Velikova G, Lodge JPA (In Press) A long term prospective longitudinal study of quality of life following liver resection for hepatobiliary malignancies. British Journal of Surgery 2008 Jul; 95(7):845-54

Johnson L, Buckley JG, Harley C, Elliott DB (2008) Use of single-vision eyeglasses improves stepping precision and safety when elderly habitual multifocal wearers negotiate a raised surface. Journal of the American Geriatrics Society, Volume 56, Issue 1, Pages 178-80

O’Connor, D.B., & Ashley, L. (2008). Are alexithymia and emotional characteristics of disclosure associated with blood pressure reactivity and psychological distress following written emotional disclosure? British Journal of Health Psychology, 13(3): 495-512. DOI: 10.1348/135910707X224496

Takeuchi E, Alison D (2008) What’s new in Oncology: targeted therapy. Contin Educ Anaesth Crit Care Pain 8: 36-38

Wright P, Marshall L, Smith A.B., Velikova G, Selby P (July 2008) Measurement and interpretation of social distress using the social difficulties inventory (SDI) European Journal of Cancer, Volume 44, Issue 11, Pages 1529-1535

Arraras JI, Kuljanic-Vlasic K, Bjordal K, Yun YH, Efficace F, Holzner B, Mills J, Greimel E, Krauss O, Velikova G, Grp EQL (2007) EORTC QLQ-INFO26: A questionnaire to assess information given to cancer patients a preliminary analysis in eight countries. Psychooncology 16: 249-254

Baker D, Middleton E, McCluskey S, Lewis P (2007) The impact of screening on population health and inequality: evidence from the Stockport Screening Programme, UK. Italian Journal of Public Health 27

Cocks K, Cohen D, Wisloff F, Sezerc O, Lee S, Hippe E, Gimsing P, Turesson I, Hajek R, Smith A, Graham L, Phillips A, Stead M, Velikova G, Brown J, Grp EQL (2007) An international field study of the reliability and validity of a disease-specfic questionnanire module (the QLQ-MY20) in assessing the quality of life of patients with multiple myeloma. Eur J Cancer 43: 1670-1678

McCluskey S, Baker D, Percy D, Lewis P, Middleton E (2007) Reductions in cardiovascular risk in association with population screening: a 10-year longitudinal study. Journal of Public Health (Oxf) 29: 379-87.

Pesudovs, K., Burr, J., Harley, C., & Elliott, D. (2007). The Development, Assessment, and Selection of Questionnaires Optometry and Vision Science, 84(8), 663-674.

Smith AB, Rush R, Velikova G, Wall L, Wright EP, Stark D, Selby P, Sharpe M (2007) The initial development of an item bank to assess and screen for psychological distress in cancer patients. Psychooncology 16: 724-732

Smith AB, Wright P, Selby PJ, Velikova G (2007) A Rasch and factor analysis of the Functional Assessment of Cancer Therapy-General (FACT-G). Health Qual Life Outcomes 5: 19

Smith, A., Wright, P., Velikova, G., & Selby, P. (2007). Measuring social difficulties in routine patient centred assessment: A Rasch analysis of the Social Difficulties Inventory, Quality of Life Research, 16:5, 823-831.

Stead, M. L., Fallowfield, L., Selby, P., & Brown, J. M. (2007). Psychosexual function and impact of gynaecological cancer. Best practice & research. Clinical obstetrics & gynaecology 21(2), 309-320.

Stein, K., Sugar, C., Velikova, G., & Stark, D. (2007). Putting the ‘Q’ in quality adjusted life years (QALYs) for advanced ovarian cancer – An approach using data clustering methods and the internet. European Journal of Cancer, 43(1), 104-113.

Velikova G, Awad N, Coles-Gale R, Wright EP, Brown JM, Selby PJ (2007a) The clinical value of quality of life assessment in oncology practice-a qualitative study of patient and physician views. Psychooncology, Nov, 21

Velikova, G., Weis, J., Hjermstad, M. J., Kopp, M., Morris, P., Watson, M., et al. (2007). The EORTC QLQ-HDC29: a supplementary module assessing the quality of life during and after high-dose chemotherapy and stem cell transplantation. European Journal of Cancer, 43(1), 87-94.

Wright P, Smith A, Roberts K, Selby P, Velikova G (2007) Screening for social difficulties in cancer patients: clinical utility of the Social Difficulties Inventory. British Journal of Cancer 97: 1063-70

Chow E, Hoskin P, van der Ly, Bottomley A, Velikova G. Quality of life and symptom end points in palliative bone metastases trials. Clin Oncol (R Coll Radiol ) 2006; 18(1):67-9.

Clarke SA, Booth L, Velikova G, Hewison J. 2006, Social Support: Gender Differences in Cancer Patients in the United Kingdom, Cancer Nursing, 29: 66-72.

Harley C, Boyd JE, Cockburn J, Collin C, Haggard P, Wann JP, Wade DT (2006) Disruption of sitting balance after stroke: influence of spoken output. J Neurol Neurosurg Psychiatry 77: 674-6

Holch, P. & Rodgers, R.J. (2006) Comparative effects of PYY3-36, CCK-8S & sibutramine on food intake, feeding behaviour & weight gain in rats. European Neuropsychopharmacology,16 41-42

McCluskey S, Burton AK, Main CJ (2006) The implementation of occupational health guidelines principles for reducing sickness absence due to musculoskeletal disorders. Occup Med-Oxford 56: 237-242

Smith, A. B., Velikova, G., Wright, E. P., Lynch, P., & Selby, P. J. 2006, Computer assisted questionnaires may facilitate collection of quality-of-life (QOL) data: At a cost, Computers in Human Behavior, vol. 22, pp. 991-1000.

Smith, A. B., Wright, E. P., Rush, R., Stark, D. P., Velikova, G., & Selby, P. J. 2006, Rasch analysis of the dimensional structure of the hospital anxiety and depression scale, Psycho-Oncology, vol. 15, no. 9, pp. 817-827. ISI:000240670300007

Bartys S, Baker D, Lewis P, Middleton E (2005) Inequity in recording of risk in a local population-based screening programme for cardiovascular disease. European Journal of Cardiovascular Prevention and Rehabilitation 12: 63-7.

Bartys S, Burton K, Main C (2005) A prospective study of psychosocial risk factors and absence due to musculoskeletal disorders–implications for occupational screening. Occupational Medicine (Lond) 55: 375-9.

Boggiano, M. M.Chandler, P. C. Oswald, K. D. Rodgers, R. J.Blundell, J. E. Ishii, Y. Beattie, A. H. Holch, P. Allison, D. al., (2005) PYY3-36 as an anti-obesity drug target. Obesity Reviews. 6(4):307-322 DOI: 10.1111/j.1467-789X.2005.00218.x

Bottomley A, Flechtner H, Efficace F, Vanvoorden V, Coens C, Therasse P, Velikova G, Blazeby J, Greimel E. On behalf of the EORTC Data Center and Quality of Life Group. Health Related Quality Of Life Outcomes in Cancer Clinical Trials. European Journal of Cancer 2005: 41, 1697-1709

Holch, P and Rodgers, R.J. (2005). Gut-brain mediated anorexia: Is there a role for PYY3-36 Behavioural Pharmacology, 16 (Suppl): S65 00008877-200509001-00206

Holch, P. & Rodgers, R.J. (2005). “Is prior fasting a necessary prerequisite for PYY3-36 induced anorexia? .” Appetite 45(3): 366.

Petersen MA, Groenvold M, Aaronson N, Blazeby J, Brandberg Y, de Graeff A, Fayers P, Hammerli E, Sprangers M, Velikova G & Bjorner JB. for the European Organisation for Research and Treatment of Cancer Quality of Life Group. Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care. J Clin Epidemiol 2005; 59:36-44

Wright, E. P., Kiely, M., Johnston, C., Smith, A. B., Cull, A., & Selby, P. J. 2005, Development and evaluation of an instrument to assess social difficulties in routine oncology practice, Quality of Life Research, vol. 14, no. 2, pp. 373-386. ISI:000227939000007

Wright, P., Smith, A., Booth, L., Winterbottom, A., Kiely, M., Velikova, G., & Selby, P. 2005, Psychosocial difficulties, deprivation and cancer: three questionnaire studies involving 609 cancer patients, British Journal of Cancer, vol. 93, no. 6, pp. 622-626. ISI:000231835500003

Arraras JI, Wright S, Greimel E, Holzner B, Kuljanic-Vlasic K, Velikova G, Eisemann M, Visser A. Development of a questionnaire to evaluate the information needs of cancer patients: the EORTC questionnaire. Patient Educ Couns 2004; 54(2):235-241.

Pascoe SW, Neal RD, Allgar VL, Selby PJ, Wright EP. Psychosocial care for cancer patients in primary care? Recognition of opportunities for cancer care. Family Practice 2004; 21(4):437-442. ISI:000222730900016

Madill, A. Holch, P (2004). A range of memory possibilities: The challenge of the False Memory Debate for Clinicians and Researchers, Clinical Psychology and Psychotherapy, 11, 299-310 DOI: 10.1002/cpp.378

Newstead SE, Handley SJ, Harley C, Wright H, Farrelly D (2004) Individual differences in deductive reasoning. Q J Exp Psychol A 57: 33-60

Stark, D., Kiely, M., Smith, A., Morley, S., Selby, P., & House, A. 2004, Reassurance and the anxious cancer patient, British Journal of Cancer, vol. 91, no. 5, pp. 893-899. ISI:000223510500014

Tschöp, M. Castañeda, T. R. Joost, H. G. Thöne-Reineke, C.Ortmann, S. Klaus, S.Hagan, M. M. Chandler, P. C. Oswald, K. D. Benoit, S. C. Seeley, R. J. Kinzig, K. P. Moran, T. H. Beck-sickinger, A. G. Koglin, N. Rodgers, R. J. Blundell, J. E. Ishii, Y. Beattie, A. H. Holch, P. Allison, D. B. et al.(2004) Does the gut hormone PYY3-36 decrease food intake in rodents? Nature 40: 650-652 doi:10.1038/nature02665

Velikova G (2004) Use of electronic quality of life applications in cancer research and clinical practice. Expert Review of Pharmacoeconomics & Outcomes Research 4: 403-411

Velikova, G., Booth, L., Johnston, C., Forman, D., & Selby, P. 2004, Breast cancer outcomes in South Asian population of West Yorkshire, British Journal of Cancer, vol. 90, no. 10, pp. 1926-1932. ISI:000221873400010

Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. 2004, Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial, Journal of Clinical Oncology, vol. 22, no. 4, pp. 714-724. ISI:000189018800022 ISI:000189018800022

Burton AK, Waddell G, Bartys S, Main C (2003) Screening to identify people at risk of long-term incapacity. Disability Medicine 3: 72-83.

Ishii,Y. Beattie, A, Holch, P & Rodgers, R.J. (2003). Putative gut hormone PYY3-36 fails to suppress food intake or body weight, Journal of Psychopharmacology, 17 (Suppl): A75

Stead ML, Brown JM, Fallowfield L and Selby P. 2003, Lack of communication between healthcare professionals and women with ovarian cancer about sexual issues, British Journal of Cancer, vol. 88, pp.666-671.

Wright, E. P., Selby, P. J., Crawford, M., Gillibrand, A., Johnston, C., Perren, T. J., Rush, R., Smith, A., Velikova, G., Watson, K., Gould, A., & Cull, A. 2003, Feasibility and compliance of automated measurement of quality of life in oncology practice, Journal of Clinical Oncology, vol. 21, no. 2, pp. 374-382. ISI:000183281200027

Sharp J, Wright P. Using international web sites as a cancer resource. Cancer Pract 2002; 10(3):167-169. ISI:000175159000009

Smith, A. B., Selby, P. J., Velikova, G., Stark, D., Wright, E. P., Gould, A., & Cull, A. 2002, Factor analysis of the Hospital Anxiety and Depression Scale from a large cancer population, Psychology and Psychotherapy-Theory Research and Practice, vol. 75, pp. 165-176. ISI:000176382600004

Stark, D., Kiely, M., Smith, A., Velikova, G., House, A., & Selby, P. 2002, Anxiety disorders in cancer patients: Their nature, associations, and relation to quality of life, Journal of Clinical Oncology, vol. 20, no. 14, pp. 3137-3148. ISI:000176920000014

Stead ML, Brown JM, Fallowfield L, Selby P (2002) >Communication about sexual problems and sexual concerns in ovarian cancer: a qualitative study. The Western journal of medicine 176: 18-9

Velikova, G., Brown, J. M., Smith, A. B., & Selby, P. 2002, Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology, British Journal of Cancer, vol. 86, no. 1, pp. 51-59.

Velikova, G., Weis, J., Watson, M., Morris, P., Kopp, M., Hjermstad, M.J., Sezer, O. (2002). Development of an EORTC questionnaire module for assessment of quality of life during high dose treatment. Bone Marrow Transplantation, Vol. 29, Suppl. 2, 0292.

Wright, E. P., Kiely, M. A., Lynch, P., Cull, A., & Selby, P. J. 2002, Social problems in oncology, British Journal of Cancer, vol. 87, no. 10, pp. 1099-1104. ISI:000179326600007

Cull, A., Gould, A., House, A., Smith, A., Strong, V., Velikova, G., Wright, P., & Selby, P. 2001, Validating automated screening for psychological distress by means of computer touchscreens for use in routine oncology practice, British Journal of Cancer, vol. 85, no. 12, pp. 1842-1849. ISI:000173373000005

Stead ML, Fallowfield L, Brown JM, Selby P. 2001, Communication about sexual problems and sexual concerns in cancer: women’s needs are not being met. British Medical Journal, vol. 323, pp. 836-837.

Velikova, G., Wright, P., Smith, A. B., Stark, D., Perren, T., Brown, J., & Selby, P. 2001, Self-reported quality of life of individual cancer patients: Concordance of results with disease course and medical records (vol 19, pg 2064, 2001), Journal of Clinical Oncology, vol. 19, no. 20, p. 4091.

Wright, E. P., Selby, P. J., Gould, A., & Cull, A. 2001, Detecting social problems in cancer patients, Psycho-Oncology, vol. 10, no. 3, pp. 242-250. ISI:000169106400006