The NHS research and development strategy is We are committed to involving members of the public in the research work we carry out in both NHS and community settings. Patients and members of the public are involved as active collaborators in our research processes as well as participants of research. The Research Advisory Group (RAG) was established in 2007 and meets twice yearly to discuss the ongoing research projects within our team. Since 2007 the group has welcomed many new members who have used their experience to help shape how our research is conducted
Aim and Purpose
The aim of the group is to involve patient, carers and members of the public in the research processes undertaken by the PCOR group. The majority of our work is conducted with patients, in the form of questionnaires and interviews, but we also involve patients and member of public in the processes of research. By involvement, we mean collaboration during key stages of research. For example, public involvement may take the form of having an input in the design of a research project, giving an opinion on research proposals, evaluating information and questionnaire packages, or disseminating the results of our research to wider interest groups.
Our group currently meets twice a year at the Leeds Cancer Centre to discuss ongoing research projects and to plan future activities. It’s a friendly group made up of members of the public that have had a personal experience of cancer, either as a patient or carer (or both), and three researchers, Christopher Bedding, Emma Nicklin and Rosemary Peacock.