Current Studies

Development of the Cancer Patient-reported Symptomatic Adverse Events Inventory Using the EORTC Item Library (EORTC-PROAE)

EORTC Item Library Guidelines Project

eRAPID INSIGHTS: Understanding, interpreting and sharing patient reported data

Occupational expectations, experiences and satisfaction in people diagnosed with a primary brain tumour: a qualitative study

Development of a Quality of Life Questionnaire for patients with Metastatic Breast Cancer

Revision of the EORTC QLQ-BN20 brain tumour module

Development of an EORTC questionnaire measuring instrumental activities of daily living (IADL) in patients with brain tumours

A pilot study of a smartphone-based symptom assessment application (OurBrainBank) for people diagnosed with glioblastoma multiforme

Understanding the long-term implications of treatment of rare brain tumours on health-related quality of life: a European cross-sectional study

Brain Re-Irradiation Or Chemotherapy: a phase II randomised trial of re-irradiation and chemotherapy in patients with recurrent glioblastoma

Closed Studies

• Social integration After a Cancer Diagnosis in Teenagers and Young Adults
• eRAPID: Electronic monitoring of patient-reported symptoms in patients with a diagnosis of thoracic cancer in Leeds Cancer Centre
• eRAPID: Towards safer delivery and monitoring of cancer treatments. Electronic patient self-Reporting of Adverse-events (AE): Patient Information and aDvice
• Communication in the context of glioblastoma treatment: what matters most in times of Covid-19
• ePRIME: electronic Patient self-Reported outcomes to Improve cancer Management and patient Experiences funded by Yorkshire Cancer Research
• LIBERATE Living better with advanced breast cancer: Symptom-monitoring, self-management and sign-posting support for women living with secondary breast cancer
• Support Needs of Young Brain Tumour Survivors and their Caregivers
• DECIDE: Dementia Carers Instrument Development
• Curative treatment modalities of early stages Non-Small Cell Lung Cancer: Effect on Patient Reported Outcomes of Video Assisted Thoracoscopic (VATS) Resection and Stereotactic Ablative Body Radiotherapy (LILAC)
• Shared-Community Follow-up for Germ Cell Tumours
• Optimising Individual Treatment Regimes and Patient Outcomes through the Use of Patient-Reported Toxicity Assessments in Patients treated with Pelvic Radiotherapy (OPTIMAL)
• Reviewing items for self-report of adverse events in clinical trials (REPORT-UK)
• electronic Patient-reported Outcomes from Cancer Survivors (ePOCS): A feasibility study
• Allinex: Using Technology to Improve Clinical Care
• QuEST T2: Pilot Study of Doctor Training Programme
• Evaluating the needs of patients living with chronic cancer: interviews and survey development
• Attention Control
• EORTC Quality of Life Group
• Social Impact of Cancer
• Compass
• Assessment of routine practice in outpatient oncology
• Questionnaire Validation
• Breast Cancer Campaign Study
• Using the internet for information exchange: design and evaluation of a website for use in follow up of cancer patients at low risk of recurrence
• Quality of Life Metric