Emma Nicklin

BA (Hons) Sociology (2011); MA Social Research (2012)

Research Fellow

Phone: 0113 2068330

Email: E.Nicklin@leeds.ac.uk

Emma joined the group in July 2017 as a full-time PhD student. Emma’s PhD focused on the supportive care needs of teenage and young adult survivors of childhood brain tumours. Since then she has been leading on a research project looking at the occupational experiences of adult brain tumour patients. Focusing on their experiences, expectations and supportive care needs of returning to work after a brain tumour diagnosis.

In previous research roles Emma has studied NHS information systems and their impact on the quality and safety of care. Emma has also worked as a part of the Leeds Primary Care Mental Health Service research team.

Research Interests

Emma’s main research interests are around quality of life of cancer patients and their caregivers. She is also interested in research including children and young people.

Teaching experience

Research, Evaluation & Special Studies Tutor (University of Leeds)

Professional membership

  • 2021 – Present European Association of Neuro-Oncology, Society member
  • 2017 – Present British Psycho Oncology Society, Society member (Conference and Event Organiser 2017- 2020)

Presentations and Publications

  • Nicklin E, Pointon L, Glaser A, Sarwar N, Kwok-Williams M, Debono M, Velikova G, Boele FW. Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: “it’s all the aftermath, and then you’re forgotten about”. Support Care Cancer. 2021 Apr 16. doi: 10.1007/s00520-021-06193-x. Online ahead of print.
  • Nicklin E, Velikova G, and Boele F. 2020. Technology is the future, but who are we leaving behind? The Lancet Oncology. 21(1), pp. 29
  • Nicklin E, Velikova G, Hulme C, Rodriguez Lopez R, Glaser A, Kwok-Williams M, et al. 2019. Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. Psycho-oncology. 28 (3):477-87.
  • Mustafa K, Czoski Murray C, Nicklin E, Glaser A, and Andrews J. Understanding barriers for research involvement among paediatric trainees: a mixed methods study. BMC Medical Education. 2018
  • Keen J, Nicklin E, Wickramasekera N, Long A, Randell R, Ginn C, McGinnis E, Willis S, Whittle J. 2018. From embracing to managing risks. BMJ Open.
  • Keen JR, Nicklin E, Long A, Randell R, Wickramasekera N, Gates C, Ginn C, McGinnis E, Willis S, Whittle J. 2018. Quality and safety between ward and board: a biography of artefacts study. Health Services and Delivery Research. 6(22)
  • Nicklin E, Keen J, Randell R, Long A, Wickramasekera N, McGinnis E, Willis S, Whittle J. Better IT, Better Data, Safer Services? [Poster] International Forum on Quality and Safety in Healthcare. 27 April 2017, London.
  • Nicklin E, Keen J, Randell R, Long A, Wickramasekera N, McGinnis E, Willis S, Whittle J. Will real-time IT systems transform quality and safety? Conference presentation at: RCN International Nursing Research Conference and Exhibition 2017, 5 April 2017, University of Oxford Examination Schools, Oxford.
  • Keen J, Nicklin E, Randell R, Long A, Wickramasekera N, Gates C, Ginn C, McGinnis E, Willis S, Whittle J. Quality and Safety From Ward To Board: A Biography of Artefacts. Final report. NIHR Health Services and Delivery Research. 2017.(In Editorial, Expected publication date September 2017)
  • Randell R, Keen J, Gates C, Nicklin E, Long A, McGinnis E, Willis S, Whittle J. Managing Quality and Safety In Real Time? Evidence From an Interview Study. Studies in Health Technology & Informatics. Health – Exploring Complexity: An Interdisciplinary Systems Approach. 2016.