Dr Emma Nicklin

BA (Hons) Sociology; MA Social Research, PhD

Research Fellow

Phone: 0113 2068504

Email: E.Nicklin@leeds.ac.uk

Emma joined the group in July 2017 as a full-time PhD student. Emma’s PhD focused on the supportive care needs of teenage and young adult survivors of childhood brain tumours. Since then she has been leading on a research project looking at the occupational experiences of adult brain tumour patients. Focusing on their experiences, expectations and supportive care needs of returning to work after a brain tumour diagnosis.

In previous research roles Emma has studied NHS information systems and their impact on the quality and safety of care. Emma has also worked as a part of the Leeds Primary Care Mental Health Service research team.

Research Interests

Emma’s main research interests are around quality of life of cancer patients and their caregivers. She is also interested in research including children and young people.

Teaching experience

Research, Evaluation & Special Studies Tutor (University of Leeds)

Professional membership

  • 2021-2023 EANO Nurse & Allied Health Professional Committee (NAC)
  • 2021 – Present European Association of Neuro-Oncology, Society member
  • 2017 – Present British Psycho Oncology Society, Society member (Conference and Event Organiser 2017- 2020)

Presentations and Publications

  • Frances, S., Murray L, Nicklin E, et al. Long-term health-related quality of life in meningioma survivors: A mixed-methods systematic review, Neuro-Oncology Advances, Volume 6, Issue 1, January-December 2024.
  • Nicklin E, Phang I, Short SC, Hoogendoorn P, Boele FW. Patient and caregiver return to work after a primary brain tumor. Neurooncol Pract. 2023 Jul 19;10(6):565-575. doi: 10.1093/nop/npad039.
  • Iyizoba-Ebozue Z, Nicklin E, Price J, et al. “Why am I still suffering?”: Experience of long-term fatigue and neurocognitive changes in oropharyngeal cancer survivors following (chemo)radiotherapy. Tech Innov Patient Support Radiat Oncol. 2024 Mar 8;30:100241. doi: 10.1016/j.tipsro.2024.100241.
  • Boele FW, Butler S, Nicklin E, et al. 2023. Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals. Palliative Medicine.
  • Nicklin E, Velikova G, Glaser A, et al. 2022. Long-term unmet supportive care needs of teenage and young adult (TYA) childhood brain tumour survivors and their caregivers: a cross-sectional survey. Supportive Care in Cancer. 30(3), pp. 1981-1992.
  • Boele F, Nicklin E, Bronsdon S, et al. 2022. Supporting carers of people with a progressive neurological condition. Policy Leeds, University of Leeds.
  • Nicklin E, Pointon L, Glaser A, Sarwar N, Kwok-Williams M, Debono M, Velikova G, Boele FW. Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: “it’s all the aftermath, and then you’re forgotten about”. Support Care Cancer. 2021 Apr 16. doi: 10.1007/s00520-021-06193-x. Online ahead of print.
  • Nicklin E, Velikova G, and Boele F. 2020. Technology is the future, but who are we leaving behind? The Lancet Oncology. 21(1), pp. 29.
  • Nicklin E, Velikova G, Hulme C, Rodriguez Lopez R, Glaser A, Kwok-Williams M, et al. 2019. Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. Psycho-oncology. 28 (3):477-87.
  • Mustafa K, Czoski Murray C, Nicklin E, Glaser A, and Andrews J. Understanding barriers for research involvement among paediatric trainees: a mixed methods study. BMC Medical Education. 2018
  • Keen J, Nicklin E, Wickramasekera N, Long A, Randell R, Ginn C, McGinnis E, Willis S, Whittle J. 2018. From embracing to managing risks. BMJ Open.
  • Keen JR, Nicklin E, Long A, Randell R, Wickramasekera N, Gates C, Ginn C, McGinnis E, Willis S, Whittle J. 2018. Quality and safety between ward and board: a biography of artefacts study. Health Services and Delivery Research. 6(22)
  • Nicklin E, Keen J, Randell R, Long A, Wickramasekera N, McGinnis E, Willis S, Whittle J. Better IT, Better Data, Safer Services? [Poster] International Forum on Quality and Safety in Healthcare. 27 April 2017, London.
  • Nicklin E, Keen J, Randell R, Long A, Wickramasekera N, McGinnis E, Willis S, Whittle J. Will real-time IT systems transform quality and safety? Conference presentation at: RCN International Nursing Research Conference and Exhibition 2017, 5 April 2017, University of Oxford Examination Schools, Oxford.